I sat for a minute, looking at the counselor who had requested the
meeting, trying to decide if I had heard her correctly. I felt my left
hand press against my pounding heart.
"Did you say, 'incapable
of learning?'" I queried. "Yes," she responded, and proceeded to mouth
paragraphs of jargon, which my confused brain was incapable of
comprehending let alone translating.
Stupefied, near panic, I
fought for coherent thought. Slowly, however, a heat began to rise from
my trip-hammering heart and to suffuse my face. Rage replaced terror.
"Incapable of learning?" I cried! "Incapable?" I repeated loudly. "How
can you say that? How can you doom a child of three years of age to
that kind of diagnosis? He taught himself the alphabet at two! How can
you say that?" I raged.
I have to admit that there were times
when I believed I was either incapable of understanding what was going
on in my son's little head or reluctant to admit that there was a
problem, but this I knew: Chris could learn. He had indeed taught
himself the alphabet. I had purchased a wooden alphabet puzzle in lower
case letters. Christopher would bring them up to me, one-by-one, and I
would say, for instance, "a - apple." It didn't take me long to realize
that he was actually learning the alphabet.
Then, I purchased an
additional puzzle with upper case letters. Sure enough, within a week,
Chris was able to bring me the a or the d or the m, but I would
designate the big A or the little c and he was correct every time.
Of course, I realize that I was teaching him. But, the "game" was
initiated by Chris, and it demonstrated a desire on his part to know, a
wish to learn. This initiation on his part was indeed a form of
self-teaching. Chris made the move. Chris wanted to know.
Incapable of learning! As my mother used to say, "bull hockey!" I
thought of my friend Sue and her daughter Gretchen. Born with Williams
Syndrome, Gretchen was an adorable, pixyish young woman with a sweetness
of soul that made her a joy to know. At birth, Sue was told that
Gretchen would never be able to dress, feed, or take care of herself.
Sue had refused to believe it, and proceeded to patiently teach her
daughter as she would any child. The end result was a charming young
woman, who admittedly was mentally challenged, but was happy, had
friends, and held down a full time job, far from the diagnosis her
mother was given at the time of Gretchen's birth.
"Where are the people who know where the people are?"2
I removed Chris from the school and entered him into a church-run
pre-school; Chris began to show progress. It was in Pre-Kindergarten
that an inability to focus caused his teachers to mention the
possibility of Central Auditory Processing Disorder. CAPD affects the
ability to process what you hear. I set up an appointment immediately to
have him tested. The results were negative. Chris passed with flying
colors.
Next came testing for Attention Deficit Disorder.
Although diagnosed with ADD, none of the medications, covering
everything from Adderall to Welbuterin, had any affect whatsoever.
More years passed and still we tried to understand Chris' particular
issues. Aspberger's was mentioned as well as epilepsy. We didn't know
where to turn until, finally, an educator suggested we take Chris to a
neurological psychologist. Chris was diagnosed with ADD, Dysgraphia,
Working Memory Deficit and Executive Function Deficit.
Dysgraphia is a neurological disorder, which interferes with the fine
motor skills needed in the physical act of writing. For instance, when
Chris puts pen or pencil to paper, some letters will "float": they will
be too high or too low, and his penmanship is generally too large or too
small, and very difficult to read. In addition, because it is so
difficult, Chris cannot write his thoughts with as much fluidity as he
can when dictating or typing.
He also confuses some words, using "tell" instead of "ask," and "never" instead of "ever," and has trouble tying his shoes.
Math is problematic because of difficulty in seeing the numbers in columns and graph paper is used.
Working Memory Deficit affects short-term memory, and Executive Function Deficit can manifest in problems with test taking.
At last, we had a diagnosis. It was not easy to accept, but coping
strategies could be taught to help Chris learn, and that was the key
word! Learn! Yes, he would learn!
Learning Differences - Not Learning Disabilities
Christopher has worked hard to overcome his learning differences -
yes, differences. It isn't that he is not able to learn, he simply
learns differently.
We have worked with our son by being active in his school work, at school and at home. When necessary, tutors are hired.
Chris plays guitar and is now the proud owner of an acoustic, six
string electric and a bass guitar. He plays excellently after a mere
eight months of lessons. He has asked for a mandolin and wants to take
piano lessons as well.
Chris is an excellent swimmer, gardener, is becoming an accomplished cook and is working with me on a cookbook.
This year, Chris finished the ninth grade with glowing reports! Not
one teacher referenced focusing problems. A master speller and a budding
essayist and poet, Chris has received excellent grades in his written
assignments, which are typed. The following is from his teacher Megan
Mosholder:
"Chris, you are receiving the passing grade of
Exceeds Expectations. Wow, Chris! Excellent job on this class! I am so
glad you were able to figure out what works best for you because you
have really excelled. I think that you did a great job on your
sketchbook and I think the drawings you created in class were also
really good. You have shown to me how well you can do when you put your
mind to it. Oh, and you also did an excellent job on those reading
assignments. Nice work, kid! I very much hope that I have the
opportunity to work with you next year."
As I finish this
article, I am awaiting an email from his publisher as to when his second
book will be released. Yes, my boy who was diagnosed as "incapable of
learning" is a twice traditionally published author.
I think
back and can't help but send out a thank you prayer to my friend Sue,
whose example helped me to help my son. She taught me to listen to my
heart, to believe in my son and his abilities, and to trust in his
desire to learn and to grow.
Update 2014
Since first writing this article, my son has accomplished many things. He is now a sought after bass player and has been since age 16. He plays nine instruments. He graduated high school and is now attending Columbus State.
In 2011 Chris was hired as a sushi chef. Trained by a master, he is highly respected both for his artistry and his work ethic.
His memoir Just Chris, a companion book to my Son of My Soul - The Adoption of Christopher, has been a best seller on Amazon many times.
Debra Shiveley Welch - author, Son of My Soul - The Adoption of Christopher
[1] Excerpts from Son of My Soul - the Adoption of Christopher, Debra Shiveley Welch, Saga Books
[2] Joan Plowright as Eva Krichinsky Avalon 1990, written and directed by Barry Levinson
Warning: All poems/articles/works by the author are protected by copyright laws against the risk of plagiarism. To safeguard the author, a regular search of the Internet is provided to ensure this law has not been broken! Any Website/Blog/Forum which displays Debra's work MUST have received her permission to do so. (Permission to adopt statement given by its creator, Debbie Stevens.)
Excerpt from Son of My Soul -The Adoption of Christopher ISBN: 1894936930 Debra Shiveley Welch, Saga Books ©2007
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